Recent Posts
- This year I’m ready to give grace to my grief
- June means memories as well as Dravet syndrome awareness
- Dravet Syndrome Foundation leading awareness month efforts
- This year, I celebrated my daughter’s birthday without her
- Laying my daughter to rest among generations of family
- Praxis gearing up to launch trial of relutrigine in Dravet, other DEEs
- How I’m anticipating grief and preparing myself for heartache
- Our new school yearbook stirred up unexpected grief
- I’m coming to terms with another heartache
- Looking back, I chose the perfect name for my late daughter