Recent Posts
- A trip to Colorado brought back memories of my late daughter
- Dravet children sought in US for clinical trial testing zorevunersen
- Honoring my husband’s birthday as my daughter would’ve wished
- Reflecting on the past year without our daughter Austen
- Fycompa safe, effective as add-on treatment for children with Dravet
- This year I’m ready to give grace to my grief
- June means memories as well as Dravet syndrome awareness
- Dravet Syndrome Foundation leading awareness month efforts
- This year, I celebrated my daughter’s birthday without her
- Laying my daughter to rest among generations of family