My Daughter Sets a New Record for Going Seizure-free

For most of her life until now, my 7-year-old daughter, Austen, who has Dravet syndrome, held the same record for the number of days she’d gone without a seizure. Dravet syndrome is characterized by frequent seizures that are often resistant to treatment. Austen’s record was 178 days.

My Daughter Joins the 6-month Club, and Other Good News

It’s been a long time since I’ve written — too long. But I have some amazing news to share. When Austen, my 7-year-old with Dravet syndrome, started having seizures, it put us on a roller coaster of doctor appointments, hospitalizations, new medications, and hoping against all hope that somehow…