Author Archives: Mary Chapman

WHO Sets Global Action Plan Through 2031 for Epilepsy Disorders

The World Health Organization (WHO) has issued a sweeping global draft action plan for epilepsy and related disorders, including Dravet syndrome, that outlines goals — including reducing death rates and stigma — through 2031. Officially called the Draft Intersectoral Global Action Plan on Epilepsy and Other Disorders…

New Nile App Seeks to Help People Manage Their Healthcare

The Epilepsy Foundation has launched a free mobile app called Nile as a self-management healthcare tool to help people with epilepsy, including those with disorders such as Dravet syndrome. It replaces the foundation’s My Seizure Diary application, which for 15 years has helped patients to monitor and track seizures,…

Epilepsy Foundation Hopes to Raise $1.75M in ‘Walks’ This Spring

The Epilepsy Foundation’s Walk to END EPILEPSY fundraiser series returns in person this spring, along with its 2.6-Million-Mile-Challenge. The “Walk” series opens in April with a goal of raising $1,750,000 to help improve the lives of the 3.4 million U.S. residents thought to live with epilepsy, including those…

Epilepsy Foundation Marks Second Year of ‘Seizure Safe Schools’

In the two years since the Epilepsy Foundation launched its nationwide Seizure Safe Schools initiative, a dozen states have enacted legislation aimed at providing a safe school environment for the approximately 470,000 children and teens in the U.S. who have an epileptic condition, including Dravet syndrome. The initiative…

Don the Purple for Epilepsy Awareness in November

Sporting purple gear and sharing personal stories, supporters are observing National Epilepsy Awareness Month in November to call attention to epilepsy and associated disorders, such as Dravet and Lennox-Gastaut syndromes. More than 65 million individuals globally live with the central nervous system disorder. One-third of those experience…

$17.5M CDC Award to Help Develop Public Health System for Epilepsy

To establish a public health infrastructure that advances health equity and improves the lives of people with epilepsy, the Centers for Disease Control and Prevention (CDC) has awarded $17.5 million to the Epilepsy Foundation and its partners. The five-year award will support efforts by these organizations to establish and sustain…