Recent Posts
- FDA awards RMAT designation to Dravet syndrome gene therapy
- A return to homeschooling reminds me how high my daughter soared
- COULD IMPROVED SEIZURE CONTROL HELP YOUR LOVED ONE DO MORE OF WHAT THEY LOVE?
- Zorevunersen shows long-lasting seizure control in Dravet patients
- A hospital visit brings back memories of a helping community
- A trip to Colorado brought back memories of my late daughter
- Dravet children sought in US for clinical trial testing zorevunersen
- Honoring my husband’s birthday as my daughter would’ve wished
- Reflecting on the past year without our daughter Austen
- Fycompa safe, effective as add-on treatment for children with Dravet