Losing my daughter Austen, who had Dravet syndrome, was the hardest thing I’ve ever gone through in my life.
Articles by Meagan Earley
Back-to-school season is usually filled with wonder and excitement. New clothes, new books, and even the smell of new pencils…
In February 2016, I learned about Dravet syndrome from a Google search. My youngest daughter, Austen, then only 8…
For a large part of her life, Austen, my 9-year-old with Dravet syndrome, didn’t seem aware of the limits…
I’ve never liked being away from my children. Even before Austen, my 9-year-old with Dravet syndrome, got sick, I…
Every year as the calendar flips to June, marking the start of Dravet Syndrome Awareness Month, I find myself…
The last few weeks have been a whirlwind. Austen, my daughter with Dravet syndrome, turned 9 years old. Eleven…
As a kid, I didn’t play team sports, but I did a lot of cheerleading and gymnastics. I loved dancing…
When Austen, my 8-year-old with Dravet syndrome, started having seizures, most were for no apparent reason. Her only…
Fintepla (fenfluramine) is what’s currently keeping Austen, my 8-year-old with Dravet syndrome, alive. It’s given us the most…