Author Archives: Meagan Cheney

“Have you tried the ketogenic diet?” I’ve been asked this question more times than I can count. When people learn that we tried cannabis therapy with Austen, my 6-year-old with Dravet syndrome, before medications like Onfi (clobazam) and Fintepla (fenfluramine), they always want to know if we have tried…

Ever since I have become a mom, I have always chosen to safely co-sleep with my babies until they were weaned. It might not be what works for every family, but for my family, it was the best choice. My oldest daughter, Addisen, 13, weaned when she was 2…

One of my biggest fears in having a special needs child has always been how society would treat them. My husband and I both have aunts with special needs, and we know firsthand how cruel the world can be to people who don’t fit into the perfect dimensions society deems…

This past week, we reached another milestone in the baby steps we are taking to return to our normal lives amid the pandemic. And the experience was amazing. Since we moved to Colorado in June 2016, we have maintained our membership to the Cheyenne Mountain Zoo in Colorado Springs. As…

Another year brings another debate with myself: to home-school next year, or not to home-school next year? I started our home-schooling journey in 2013 when my oldest daughter, Addisen, was 5. I home-schooled her until halfway through third grade, when we found a school here in Colorado we liked. For…

This past week our family suffered a tragic loss. Our rabbit, Susie Stew, whom we had adopted roughly 15 months earlier, passed away in her sleep. Between the time our neighbors had her (at least the entire three years we lived next to them) and the time we had her,…

I’m trying something new this summer: A slow, intentional way of life. I dream of mornings that aren’t rushed or chaotic, and evenings when I’m able to get the kids bathed and in bed without either of us breaking down in tears or shouting. I’m not delusional. I know my…

Autism is a secondary diagnosis for my 6-year-old daughter, Austen. Her primary diagnosis is Dravet syndrome, which causes her to have intractable epilepsy, weak muscle tone, and many other symptoms. I’m not sure if her autism is a stand-alone diagnosis, and if she would have it whether or…

A few weeks ago, my daughter Austen turned 6 years old. It was an exciting day that she had been looking forward to for months. She wanted a unicorn birthday party, complete with a unicorn cake, unicorn decor, and…

Something crazy is happening this week. Somehow my daughter Austen, the baby who must have only been born yesterday, is turning 6 years old. I can’t let myself believe it, yet I must. This little girl has been a surprise from the moment I found…