“Mom, where is my friend? You know, the one who looks like my twin?” We were at the baseball practice…
Meagan Earley
Meagan Earley lives in Paris, Texas with her three children, dogs, cats, and a turtle named Carl. She is a preschool teacher by day and a caregiver to her daughter, Austen, who was diagnosed with Dravet syndrome in 2016. Meagan has relied heavily on her "village" of other Dravet syndrome caregivers in the years since Austen’s diagnosis. She writes her column in the hope of paying it forward to other parents who are fighting each day to help their child thrive in spite of their circumstances.
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Articles by Meagan Earley
When my 6-year-old daughter, Austen, was born, she seemed completely “normal” for the first five months of her life. She…
When my daughter Austen, now 6, started having seizures years ago due to Dravet syndrome, it took us over…
“Mom, I’ve decided I don’t want you working anymore. Now I have to go to school even earlier, and I…
“Mom, is Austen OK?” Addi, my 13-year-old daughter, was on the school bus headed home last…
I sent my two youngest children back to school earlier this month. While their oldest sister, Addi, 13,…
I sent my two youngest kids back to school this month for the first time since the COVID-19 pandemic began.
I took all three of my children out of school on March 13, 2020, the day before our local school…
Thank You, Colorado
In June 2016, I packed up my home in Texas, my three children, and my entire life, and moved 752…
Our lives are changing, and this time, it isn’t due to the effects of Dravet syndrome. I have mostly been…