When my daughter, Austen, first started seizing at 5 months old, we were told that it was probably just febrile seizures … even when she went into a status seizure two days later, had to have a code blue called, and was transferred to a bigger hospital with…
Columns
“It’s probably just a febrile seizure. It happens to one in 25 children, and 60% of those kids will never have another one. She’s going to be fine.” Those were the words spoken to me by the emergency room doctor, a…
I was alone in the car on a hot May day. My daughter, Austen, who had just turned 1 and was baptized the previous day, slept in her car seat while my husband ran into the store. Then the phone rang. “Her test…
Recent Posts
- Pivotal trial of Dravet syndrome gene therapy begins, now enrolling children
- Is it Dravet? SCN1A gene testing provides answers, guides treatment.
- I didn’t stop being a mom when my child with Dravet syndrome died
- Add-on Fintepla may improve daily functioning in Dravet syndrome: Study
- The stress of caring for a child with special needs affected my health