I was alone in the car on a hot May day. My daughter, Austen, who had just turned 1 and was baptized the previous day, slept in her car seat while my husband ran into the store. Then the phone rang. “Her test…
Columns
Recent Posts
- I wouldn’t change a single thing about my daughter’s story
- New study links mitochondrial dysfunction to Dravet and other DEEs
- FDA, developer align on pivotal study of Dravet syndrome gene therapy ETX101
- Storing memories to teach future generations about our journey
- Vaccines recommended in Dravet, but managing fever risk is key