The Journey to the Truth – a Column by Meagan Cheney

Meagan joined BioNews in 2020 as a columnist for Dravet Syndrome News. Before joining the BioNews team Meagan was a freelance writer for six years. She also runs her own blog www.athomewithmeagan.com, where she writes about homemaking and parenting. Meagan lives in Colorado with her husband and three children. Her youngest daughter, Austen, was diagnosed with Dravet syndrome in May 2016 at 1 year old.

March 15, 2021March 11, 2021

Learning to Let Go and Share the Dravet Syndrome Burden

Columns, The Journey to the Truth – a Column by Meagan Cheney

For the past five years, I have been with my daughter Austen during every doctor’s appointment, blood draw, and medical test and procedure. Every time she’s walked through the doors ... Read more

March 9, 2021March 4, 2021

Why I Share My Family’s Life With Dravet Syndrome

Columns, The Journey to the Truth – a Column by Meagan Cheney

I am often asked why I write about my life so much. Or if I get tired of sharing the daily ins and outs of our family life. I guess ... Read more

March 2, 2021February 26, 2021

I Can’t Let My Fears Limit My Daughter’s Abilities

Columns, The Journey to the Truth – a Column by Meagan Cheney

For parents of a young child with a debilitating condition, sometimes even the most common childhood comments can make the heart skip a beat. Last week, my daughter Austen ran ... Read more

February 23, 2021February 19, 2021

I Created a Brat, and Now I’m Trying to Undo It

Columns, The Journey to the Truth – a Column by Meagan Cheney

“Remember, nobody likes a brat.” I think I might have started a column with that same statement before, but the reason I do so is because it’s one of the ... Read more

February 16, 2021February 12, 2021

The Risk of a Seizure Is Always Present With Dravet Syndrome

Columns, The Journey to the Truth – a Column by Meagan Cheney

Regardless of how long my daughter Austen goes without a seizure, the risk is always there. Without a cure for Dravet syndrome, that risk will always exist in the shadows, ... Read more

February 9, 2021February 5, 2021

Austen’s First Sleepover Was a Major Milestone

Columns, The Journey to the Truth – a Column by Meagan Cheney

For so long, we avoided many things because of my daughter Austen’s seizures. We didn’t go on play dates, or to indoor playgrounds. We barely even went to friends’ birthday ... Read more

February 2, 2021January 29, 2021

Striving to Maintain a Healthy Marriage as Dravet Syndrome Parents

Columns, The Journey to the Truth – a Column by Meagan Cheney

Author and relationship blogger Fawn Weaver said, “A great marriage isn’t something that just happens; it’s something that must be created.” According to the American Psychological Association, about 40-50% of ... Read more

January 26, 2021January 22, 2021

Coming to Terms With Our Daughter’s Heartbreaking Cognitive Delays

Columns, The Journey to the Truth – a Column by Meagan Cheney

When it comes to our journey with Dravet syndrome, my husband has always been the optimist among us. When our daughter Austen’s seizures kept coming in those first few months, ... Read more

January 19, 2021January 15, 2021

My House May Be Messy, but My Daughter Feels at Home

Columns, The Journey to the Truth – a Column by Meagan Cheney

I want to be a domestic goddess and have a home that’s pristinely clean whenever you open the door. I want a home that’s company-ready, whether you come through the ... Read more

January 12, 2021January 8, 2021

I Cried Tears of Joy the Day We Found Our Village

Columns, The Journey to the Truth – a Column by Meagan Cheney

As a special needs mom, I know what it’s like for my child to feel left out. Even when we are invited to birthday parties, we often find ourselves declining. ... Read more