• Cannabis-based Zygel Helps Reduce Seizures in Childhood Epilepsy Syndromes, Trial Reports
  • Blocking Specific Sodium Channel May Offer Way of Treating Dravet, Early Study Suggests
  • NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC
  • Oral Cannabidiol Epidyolex Approved in Europe as Add-on Treatment for Dravet, Lennox-Gastaut Syndromes
  • FTC Warns Companies Against Unsubstantiated Advertising of CBD Products for Fibromyalgia
  • Diacomit is Effective as Add-on Therapy to Reduce Refractory Seizures in Dravet, Review Study Finds
  • BUTTERFLY Study of Children and Teens Now Enrolling with Goal of Better Understanding Dravet
  • ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases
  • At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing
  • Stoke Therapeutics’ STK-001 Granted Orphan Drug Designation by FDA
  • EU Approval of Oral Cannabidiol as Add-On Therapy for Dravet Favored by CHMP
  • Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases