• NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
  • For Our Family, Advent Is a Time of Needed Rest
  • UK Survey Examines Effects of COVID-19 on Dravet Patients
  • Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe
  • Finding Something to Be Thankful for in the Midst of 2020
  • 1st Patient Dosed in Phase 2 Study of EPX-100 for Dravet Syndrome
  • Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry
  • When Special Needs Moms Get Sick
  • Specific ICD-10 Codes for Dravet Ultimately Could Improve Patient Outcomes
  • Epilepsy Awareness Month Calls Attention to Seizure Disorders, Dravet, LGS
  • NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits
  • Seeing Epilepsy Awareness in a New Light