• Foundation Promoting New Dravet ICD-10 Codes
  • Learning to Let Go and Share the Dravet Syndrome Burden
  • Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day
  • UK Survey: Risks of Severe Outcomes from COVID-19 Not Increased Significantly
  • Why I Share My Family’s Life With Dravet Syndrome
  • The Arc Awarded Comcast NBCUniversal Grant for Special Education Initiative
  • I Can’t Let My Fears Limit My Daughter’s Abilities
  • Jazz Pharma to Gain Access to Epidiolex in $7.2B Acquisition of GW Pharma
  • Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion
  • Rare Disease Day at NIH, Set for March 1, Growing Year by Year
  • I Created a Brat, and Now I’m Trying to Undo It
  • Proposed Maryland Law Would Create ‘Seizure Safe Schools’