Dravet’s Syndrome News
Recent Posts
- Register Now for Global Genes’ RARE Patient Advocacy Summit
- New Program Supports Siblings of Rare Epilepsy Patients
- We Take Another Step Toward ‘Normal’
- NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration
- The Way My Kids Defend Their Sister Makes My Heart Happy
- CAMP4 Buys Global Rights to OPKO Health’s RNA-based Therapeutics
- Our Zoo Trip Was 17 Months in the Making
- US Patient Groups Give Thumbs-Up to Rule Against Surprise Billing
- Fintepla Successfully Managed Patient’s Hard-to-treat Seizures
- Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds