Dravet’s Syndrome News

Recent Posts

• Reflecting on the past year without our daughter Austen
• Fycompa safe, effective as add-on treatment for children with Dravet
• This year I’m ready to give grace to my grief
• June means memories as well as Dravet syndrome awareness
• Dravet Syndrome Foundation leading awareness month efforts
• This year, I celebrated my daughter’s birthday without her
• Laying my daughter to rest among generations of family
• Praxis gearing up to launch trial of relutrigine in Dravet, other DEEs
• How I’m anticipating grief and preparing myself for heartache
• Our new school yearbook stirred up unexpected grief