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Recent Posts

• The little lost journal that brings back memories of our Dravet journey
• FDA grants breakthrough status to new gene therapy for Dravet syndrome
• First look at ETX101 suggests early benefits for children with Dravet
• Grief comes in waves and reminds me of the start of a long journey
• Stoke readies to meet with FDA on 4 years of zorevunersen study data
• Continuing family traditions helps keep my daughter’s memory alive
• FDA awards RMAT designation to Dravet syndrome gene therapy
• A return to homeschooling reminds me how high my daughter soared
• COULD IMPROVED SEIZURE CONTROL HELP YOUR LOVED ONE DO MORE OF WHAT THEY LOVE?
• Zorevunersen shows long-lasting seizure control in Dravet patients