We Experienced a COVID-19 Scare
Over the last year, we have pretty much kept our family in a constant state of quarantine, fearing what would happen if Austen, our 6-year-old with Dravet syndrome, caught the coronavirus. When something…
The Journey to the Truth
— Meagan Earley
Meagan Earley lives in Paris, Texas, with her three children, dogs, cats, and a turtle named Carl. She is a preschool teacher and a caregiver to her daughter, Austen, who was diagnosed with Dravet syndrome in 2016. Meagan has relied on her village of other Dravet syndrome caregivers in the years since Austen’s diagnosis, and writes her column in the hope of paying it forward to other parents who are fighting each day to help their child thrive in all circumstances.
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Continuing family traditions helps keep my daughter’s memory alive
Even before Austen, my 9-year-old daughter who passed away from complications of Dravet syndrome, was born, I always loved traditions. Our family may not have had much money to spend frivolously, but traditions made…
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