The Journey to the Truth
— Meagan Earley

For parents of a young child with a debilitating condition, sometimes even the most common childhood comments can make the heart skip a beat. Last week, my daughter Austen ran up excitedly and exclaimed, “Mama,…

“Remember, nobody likes a brat.” I think I might have started a column with that same statement before, but the reason I do so is because it’s one of the most memorable things I’ve been…

Regardless of how long my daughter Austen goes without a seizure, the risk is always there. Without a cure for Dravet syndrome, that risk will always exist in the shadows, lurking and hiding, and waiting for the perfect circumstances…

For so long, we avoided many things because of my daughter Austen’s seizures. We didn’t go on play dates, or to indoor playgrounds. We barely even went to friends’ birthday parties…

Author and relationship blogger Fawn Weaver said, “A great marriage isn’t something that just happens; it’s something that must be created.” According to the American Psychological Association, about 40-50% of marriages in the U.S. end in divorce.

When it comes to our journey with Dravet syndrome, my husband has always been the optimist among us. When our daughter Austen’s seizures kept coming in those first few months, my husband held out hope…

I want to be a domestic goddess and have a home that’s pristinely clean whenever you open the door. I want a home that’s company-ready, whether you come through the door at 6 a.m.

As a special needs mom, I know what it’s like for my child to feel left out. Even when we are invited to birthday parties, we often find ourselves declining. That might seem a bit…

Today, a memory popped up on my Facebook timeline from five years ago. It was a video of our little baby Austen, then 6 months old, bouncing in her jumper. I was trying to get her to…

For my husband and me, Christmas came early this year. Today, Dec. 22, marks four months of seizure freedom for our daughter, Austen. The only time she has ever gone this long without a seizure was before…

When I started this job, I really thought I would be writing about seizures each week. So, I find it kind of baffling that I barely write about them at all anymore. But the…

Tantrums in the grocery store when too many people are around. Biting friends and siblings when they don’t want to share their toys right away. Throwing herself on the ground…