I grew up in northeastern Texas, where it snows about once a year. Usually, it’s just a dusting that stays on the ground one to two days at most. Every few years, though, Mother Nature sends a real winter storm our way. We just survived the latest one, a week…
An online occupational therapy program that coaches parents on how to help their children problem-solve may help young people with Dravet syndrome improve at daily tasks, a small study suggested. The program is based on the Cognitive Orientation to daily Occupational Performance (CO-OP) Approach, a therapy usually delivered directly…
Lab-grown nerve cells from people with Dravet syndrome have abnormal levels of chemical elements that regulate nerve cell function, including potassium, copper, and zinc, a study found. Researchers said these imbalances may contribute to abnormal brain electrical activity, which makes people with Dravet prone…
Epidiolex (cannabidiol) reduced seizure frequency in five children with Dravet syndrome caused by 2q24.3 microdeletions, according to a case series. Dravet syndrome is a severe form of epilepsy that begins in early infancy. A 2q24.3 microdeletion involves the loss of a segment of chromosome 2 that includes the…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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