Parents reported that their children with Dravet syndrome experienced more frequent, longer, and more intense seizures during heatwaves, according to a qualitative interview study. Parents described heatwaves, sudden temperature changes, water exposure, and even excitement during hot weather as common seizure triggers. Many said they reorganized daily routines and…
Despite treatment with available antiseizure medications, people with Dravet syndrome often still experience seizures, as well as nonseizure symptoms, a new study highlights. The study also found that many Dravet patients end up discontinuing or switching seizure medications due to side effects. Overall, these data “suggest that current treatments…
Discussion
I have always loved dogs, and for most of my life, I’ve had one by my side. There’s just something about their unconditional love that feeds my soul. My children will get mad at me if they don’t get their way, but my dogs are happy as long as I…
Behavioral and social difficulties are common in young children with Dravet syndrome, often emerging in toddlerhood and worsening through early childhood, according to a natural history study. The ENVISION (NCT04537832) study followed 58 children with Dravet syndrome, aged 6 months to 5 years, for up to two years.
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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