Treatment with Fintepla (fenfluramine) reduced convulsive seizures by at least half in nearly 60% of people with Dravet syndrome in a small, real-world study in Japan, with many responding at low doses, data show. Among the patients who responded to Fintepla — approved in the Asian nation since…
Discussion
When my 10-year-old daughter, Avery, had her first seizure at 3 months old, I was all in. I made it my priority to find a solution. We didn’t yet know what was causing her to have seizures, so I fought with everything I had to figure out what was happening…
Discussion
Neurospheres, 3D clusters of early-stage neural cells derived from people with Dravet syndrome, showed patient-specific protein patterns that varied in association with disease severity in a recent study. Researchers broadly analyzed proteins in the neurospheres and found that, despite a shared molecular foundation, each patient’s cells exhibited distinct patterns…
Discussion
When my daughter Avery was diagnosed with Dravet syndrome at just 10 months old, I wondered what her life would look like. I knew it would be different from that of her peers, particularly as she grew older. Some of my greatest questions became: Will she have friends? Will…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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