Halloween was my favorite holiday when I was a child. My grandparents threw a big party every year for their friends and family — with music, food, and games like horseshoes and pool. We would all dress up, run around like maniacs on sugar rushes, and end the night with…
Discussion
When my daughter Avery joined the youth cheer team this year, I wasn’t sure what to expect. Because of her developmental disability, speech delay, and the many seizure triggers brought on by Dravet syndrome, her participation in youth sports has been almost nonexistent. When we walked into the cheerleading…
Discussion
Stoke Therapeutics says it’s aligned with the U.S. Food and Drug Administration (FDA) on key aspects of a planned application seeking approval of zorevunersen for Dravet syndrome — including how to analyze data from an ongoing Phase 3 clinical trial testing the potential anti-seizure med. According to…
Discussion
Note: This column describes the author’s own thoughts about various seizure medications and therapies. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Early on, when Avery, my daughter with Dravet syndrome, started having seizures, I was scared of…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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