Most children and adults living with Dravet syndrome in the U.S. who remain on Fintepla (fenfluramine) for at least six months have fewer seizures and fewer hospital and emergency visits during that time, a study finds.
Discussion
Today marks two years since my daughter Austen passed away from complications of Dravet syndrome. Two years since I last heard her voice or held her hand. Two years since I broke up a fight between her and her siblings, or had to go into their room to tell…
Discussion
Use of cannabidiol — a chemical from the hemp plant used for treating epilepsy — as an add-on treatment for individuals with developmental and epileptic encephalopathies (DEEs), including Dravet syndrome, leads to meaningful reductions in seizures for about half of patients, a new study has found. “Adjunctive pharmaceutical-grade cannabidiol…
Discussion
Treatment with Fintepla (fenfluramine) reduced convulsive seizures by at least half in nearly 60% of people with Dravet syndrome in a small, real-world study in Japan, with many responding at low doses, data show. Among the patients who responded to Fintepla — approved in the Asian nation since…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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