My daughter Austen had always wanted to see the ocean and was jealous that her older siblings had gotten to live in Hawaii while she hadn’t. It didn’t matter that her brother, Atlas, was only 8 months old when we left the island; Austen still felt that it was unfair…
Discussion
A couple years ago, I was talking with several other parents when the topic of parenting “sweet spots” came up. They all had kids similar in age to mine, with one difference: My youngest daughter, Avery, has Dravet syndrome. These parents talked about entering the season when their kids…
Discussion
Fintepla (fenfluramine) — either alone or as an add-on to Diacomit (stiripentol) — was associated with fewer seizures in a small group of young patients with Dravet syndrome, a study from Italy found. The results also suggested that starting treatment earlier may offer cognitive and motor benefits.
Discussion
When my daughter began having seizures at 3 months old, I immediately went into fight mode. At that time, Avery was a perfectly healthy and typically developing baby. I thought there had to be a reason these seizures were happening, and once we figured that out, we could find…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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