Dravet syndrome is a rare form of epilepsy usually marked by infantile-onset seizures, along with a range of cognitive, behavioral, and motor symptoms. Each person responds differently to Dravet syndrome treatment, so individualized care is essential. A Dravet syndrome treatment plan may include medications, non-drug approaches, supportive therapies,…
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Behavioral and social difficulties are common in young children with Dravet syndrome, often emerging in toddlerhood and worsening through early childhood, according to a natural history study. The ENVISION (NCT04537832) study followed 58 children with Dravet syndrome, aged 6 months to 5 years, for up to two years.
Discussion
I grew up in northeastern Texas, where it snows about once a year. Usually, it’s just a dusting that stays on the ground one to two days at most. Every few years, though, Mother Nature sends a real winter storm our way. We just survived the latest one, a week…
An online occupational therapy program that coaches parents on how to help their children problem-solve may help young people with Dravet syndrome improve at daily tasks, a small study suggested. The program is based on the Cognitive Orientation to daily Occupational Performance (CO-OP) Approach, a therapy usually delivered directly…
Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
Treatment
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.