My entire world revolves around my children. As a special needs mom, I often lost my own identity in the fight to not only give my late daughter, Austen, a better life, but to keep her alive. But when Austen was about 2, I found myself at a point where…
Caregivers of people with Dravet syndrome frequently experience significant mental health challenges, including anxiety and depression, sleep problems, fatigue, stress, and social isolation, according to a systematic review of studies. The findings, published in the journal Epilepsy, highlight the emotional burden placed on caregivers and underscore the need for routine assessment…
Astrocytes change how they connect and function in a mouse model of Dravet syndrome — even without visible brain damage — which likely worsens seizures and cognitive problems, making them a potential target for future treatments, according to a study. These support cells in the brain help…
Discussion
I tend to second-guess myself. I’ve done it my entire life. But it got worse when I became a mom, and worse again when I became a mom to a special needs child. When your entire world is centered around keeping a child alive, it’s hard not to fixate on…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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