I grew up in a family that didn’t get rid of our old things. Items weren’t thrown away or sold at garage sales. Things that could be used were kept in rotation, and things that weren’t were packed away and stored. As a child, I remember hours spent looking at…
People with Dravet syndrome should receive all routine vaccinations recommended for their age, but careful strategies are needed to reduce the risk of fever-related seizures, a study reported. The researchers suggested practical approaches to manage fever in Dravet patients, but noted that further studies are needed to develop guidelines…
Discussion
If you had asked childhood Meagan what she wanted to be when she grew up, she would have said a mom. Four-year-old Meagan would have said a shortstop for the Texas Rangers, but after that, being a mom was my biggest dream. I didn’t anticipate making that goal a reality…
A clinical study showed that Soticlestat, when added to standard treatment, tended to reduce convulsive seizures in children and young adults with Dravet syndrome compared with a placebo, although the study “narrowly missed” its main statistical goal, according to research led by Takeda Pharmaceuticals. The company decided last…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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