If you had asked childhood Meagan what she wanted to be when she grew up, she would have said a mom. Four-year-old Meagan would have said a shortstop for the Texas Rangers, but after that, being a mom was my biggest dream. I didn’t anticipate making that goal a reality…
A clinical study showed that Soticlestat, when added to standard treatment, tended to reduce convulsive seizures in children and young adults with Dravet syndrome compared with a placebo, although the study “narrowly missed” its main statistical goal, according to research led by Takeda Pharmaceuticals. The company decided last…
Problems with sleep and body temperature regulation in Dravet syndrome are linked through the hypothalamus — the part of the brain that regulates both — and targeting it may help develop better treatments, according to a study in a mouse model of the disease. “These findings highlight a connection between…
Parents reported that their children with Dravet syndrome experienced more frequent, longer, and more intense seizures during heatwaves, according to a qualitative interview study. Parents described heatwaves, sudden temperature changes, water exposure, and even excitement during hot weather as common seizure triggers. Many said they reorganized daily routines and…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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