Patients will be randomly assigned to groups in a Phase 3 clinical trial testing bexicaserin for seizures associated with Dravet syndrome, according to the treatment’s developer. Lundbeck said it expects to complete patient randomization — assigning participants to groups receiving the treatment or a placebo — within…
Discussion
My youngest daughter, Avery, has Dravet syndrome. Because of this diagnosis, the treatments she needs, her day-to-day care and supervision, and seizure triggers, my world has largely revolved around her for the past 10 years — but my other kids need me, too. This has probably been the hardest…
Discussion
Across a group of children with severe childhood epilepsies, including Dravet syndrome, genetic test results did not independently predict long-term seizure or developmental outcomes, according to a new study. “Although … genetic testing has diagnostic and precision-medicine selection utility in childhood-onset [developmental and epileptic encephalopathies], long-term seizure and developmental…
Discussion
When my husband, Jonathan, and I got married 17 years ago, there is no way we could have anticipated the hardship that lay ahead of us. While all marriages and relationships experience some measure of difficulty, the tumultuous seasons and trauma related to our daughter Avery’s Dravet syndrome diagnosis…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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