Note: This column describes the author’s own thoughts about various seizure medications and therapies. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Early on, when Avery, my daughter with Dravet syndrome, started having seizures, I was scared of…
Discussion
Treatment with cannabidiol (CBD) can help reduce the frequency of seizures for some adults with Dravet syndrome and other forms of childhood-onset epilepsy, a study showed. The study reported data from 37 adults with epilepsy who underwent CBD treatment at three medical centers in Spain. After one year of…
Discussion
My daughter Austen had always wanted to see the ocean and was jealous that her older siblings had gotten to live in Hawaii while she hadn’t. It didn’t matter that her brother, Atlas, was only 8 months old when we left the island; Austen still felt that it was unfair…
Discussion
A couple years ago, I was talking with several other parents when the topic of parenting “sweet spots” came up. They all had kids similar in age to mine, with one difference: My youngest daughter, Avery, has Dravet syndrome. These parents talked about entering the season when their kids…
Becoming educated and informed about Dravet syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your Dravet syndrome journey.
There is no cure for Dravet syndrome yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
Get regular updates to your inbox.
