Lindsey Shapiro, PhD,  science writer—

Most Dravet syndrome patients utilize various types of therapies beyond medicines to manage the disease, including physiotherapy, occupational therapy, and psychological therapy, according to a recent survey of caregivers and family members in Spain. While survey respondents sometimes found these non-pharmacological interventions to be effective, sizable numbers were less…

Fintepla (fenfluramine) significantly reduces seizure frequency in children and adolescents with Dravet syndrome who experience hard-to-treat seizures, according to new Phase 3 trial data. These findings add to positive results from other Fintepla Phase 3 trials, further supporting the benefits of the approved add-on therapy for this…

Epidyolex may be safe and effective for people with Dravet syndrome and Lennox-Gastaut syndrome (LGS) without accompanying use of clobazam (brand names Onfi and Sympazan), according to a recent European analysis. While the oral cannabidiol solution is cleared for use without clobazam in the U.S. — where it…

The safety and effectiveness of Valtoco, a diazepam nasal spray approved in the U.S. for use as an intermittent rescue therapy for people with epilepsy, was not compromised among patients also using cannabidiol (CBD) as part of their daily treatment regimen. These findings come from a new analysis of data…

Neurofeedback training — a way of training the brain to normalize its electrical signaling patterns — led to seizure reductions and sleep improvements for a young girl with Dravet syndrome. That’s according to a new case study, which was the first to report the use of this approach —…

Treatment with Epidiolex led to a range of improvements — from fewer seizures to improved cognition and better social skills — for both children and adults with Dravet syndrome and Lennox-Gastaut syndrome (LGS), according to new analyses of a U.S. caregiver survey. The results, presented in a pair…

For this year’s International Epilepsy Day on Feb. 13, supporters joined together to eliminate myths and misconceptions about epilepsy. Organized by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), the event is held on the second Monday of each February in an…

Caregivers of children with Dravet syndrome report that their child’s use of Fintepla (fenfluramine) significantly reduces seizure burden and leads to a number of quality-of-life benefits for their children, themselves, and the rest of their family. That’s according to a recent study conducted in Europe, which involved interviews…

Long-term use of the sodium channel blocker phenytoin led to reductions in seizure frequency for four male patients with Dravet syndrome, according to a study in Australia. Weaning off the medication caused seizures to worsen, and re-starting it lowered seizure frequency and improved alertness. The findings are in…

Up to three years of treatment with Epidiolex in a clinical trial led to sustained reductions in seizure frequency — with the oral cannabidiol generally well-tolerated — in children and adults with seizures associated with tuberous sclerosis complex (TSC). That’s according to final data from an open-label extension…