From honoring those lost to Dravet syndrome to sharing facts on social media, supporters are marking Dravet Syndrome Awareness…
Articles by Mary Chapman
International Epilepsy Day for 2024 aims to promote public understanding of a condition thought to affect some 65 million…
Most children with Dravet syndrome receive their diagnosis before they are a year old, and about seven months…
To help ensure that those with Dravet syndrome receive high-quality care regardless of their financial situation, the Dravet…
From sporting something purple to sharing graphics on social media, supporters are marking National Epilepsy Awareness Month (NEAM), observed…
The 4th annual Dance for Dravet will be presented Oct. 14 in St. Louis, Missouri to support the research…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
From remembering those lost to Dravet syndrome to sharing patient stories, supporters are gearing up to mark Dravet Syndrome…
A Phase 3 clinical trial is recruiting Dravet syndrome patients between the ages of 2 and 21 to assess…
With the signing into law of Brynleigh’s Act by Gov. Larry Hogan, Maryland has become the 15th state to pass…