Siblings of children with Dravet syndrome often grow up “in an environment permeated by stress, anxiety, and fear for their…
Articles by Mary Chapman
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
The biopharmaceutical company Zogenix is introducing a Dravet syndrome community photo-sharing campaign and contest to benefit the Dravet Syndrome…
Activities ranging from submitting names for a virtual remembrance wall to swapping out Facebook photo frames are on tap for…
In its 13th year, the nonprofit Dravet Syndrome UK (DSUK) — which seeks to improve the lives of those…
The Dravet Syndrome Foundation (DSF) is promoting awareness of the new global health statistics codes now in effect for…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…
If a Maryland bill called Brynleigh’s Act becomes law, the state will join five others — all of which have…