Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
Articles by Mary Chapman
Bringing together patients and their families — virtually, this year — the Dravet Syndrome Foundation (DSF) will present its…
The Epilepsy Foundation’s Community Day, being held virtually this year, will offer patients, caregivers, and advocates the latest…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
In light of the COVID-19 pandemic, there are several ways to get involved virtually to support Dravet Syndrome…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
In a move that will give Dravet syndrome patients easier treatment access, the U.S. Drug Enforcement Administration (DEA) has reclassified…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…