I have a confession. I used to hate Epilepsy Awareness Month. Maybe it’s because our daughter…
Meagan Earley
Meagan Earley lives in Paris, Texas with her three children, dogs, cats, and a turtle named Carl. She is a preschool teacher by day and a caregiver to her daughter, Austen, who was diagnosed with Dravet syndrome in 2016. Meagan has relied heavily on her "village" of other Dravet syndrome caregivers in the years since Austen’s diagnosis. She writes her column in the hope of paying it forward to other parents who are fighting each day to help their child thrive in spite of their circumstances.
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Articles by Meagan Earley
“Look at the sky, Mom, it’s orange. That means it’s Halloween!” Austen was right, the sky…
Today a mom asked me if I thought she should try Fintepla (fenfluramine) for her child. They…
I saw a meme a while back that explains what would happen if a special needs mom fell…
My parents have always been doting grandparents. Since my oldest daughter was born 12 years ago, it has…
Austen was 8 months old when we adopted Milo. Her seizures had already started, but…
Like many families around the world, my family is home schooling this year. My degree might be in…
This week, an all-too-familiar scene greeted me when I logged onto Facebook: a teenage boy smiling at the…
Last week, my daughter Austen and I were doing our normal before-bed ritual. We cuddle up together on…
Being a special needs parent is the hardest job I’ve ever had. I constantly feel like I am not doing…