Every year as the calendar flips to June, marking the start of Dravet Syndrome Awareness Month, I find myself…
Articles by Meagan Earley
The last few weeks have been a whirlwind. Austen, my daughter with Dravet syndrome, turned 9 years old. Eleven…
As a kid, I didn’t play team sports, but I did a lot of cheerleading and gymnastics. I loved dancing…
When Austen, my 8-year-old with Dravet syndrome, started having seizures, most were for no apparent reason. Her only…
Fintepla (fenfluramine) is what’s currently keeping Austen, my 8-year-old with Dravet syndrome, alive. It’s given us the most…
When my marriage ended several years ago, I received advice that went something like this: “You will never find…
A couple months ago, Austen, my 8-year-old with Dravet syndrome, participated in a series of practice tests to prepare…
When Austen, my 8-year-old with Dravet syndrome, started taking Fintepla (fenfluramine), I didn’t have much hope. It was…
“Does this mean I have a disability, too?” The D-word is akin to a four-letter word in our home. We…
Austen, my 8-year-old daughter with Dravet syndrome, is in the third grade this year. That means she’ll take standardized…