When my marriage ended several years ago, I received advice that went something like this: “You will never find…
Meagan Earley
Meagan Earley lives in Paris, Texas with her three children, dogs, cats, and a turtle named Carl. She is a preschool teacher by day and a caregiver to her daughter, Austen, who was diagnosed with Dravet syndrome in 2016. Meagan has relied heavily on her "village" of other Dravet syndrome caregivers in the years since Austen’s diagnosis. She writes her column in the hope of paying it forward to other parents who are fighting each day to help their child thrive in spite of their circumstances.
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Articles by Meagan Earley
A couple months ago, Austen, my 8-year-old with Dravet syndrome, participated in a series of practice tests to prepare…
When Austen, my 8-year-old with Dravet syndrome, started taking Fintepla (fenfluramine), I didn’t have much hope. It was…
“Does this mean I have a disability, too?” The D-word is akin to a four-letter word in our home. We…
Austen, my 8-year-old daughter with Dravet syndrome, is in the third grade this year. That means she’ll take standardized…
Have you ever had a dream that shook you to your core? I’m talking about a dream that seemed so…
When we think of the Christmas season, many traditions come to mind, such as watching holiday movies, caroling, and spending…
As a parent of three, I took many experiences with my two oldest kids for granted. But because my youngest,…
October 2021 was one of the hardest months of my life. My marriage was ending, and in the chaos,…
When Austen, my 8-year-old with Dravet syndrome, was born, I’d been married for almost five years. My relationship was…