For most of her life until now, my 7-year-old daughter, Austen, who has Dravet syndrome, held the same record…
Meagan Earley
Meagan Earley lives in Paris, Texas with her three children, dogs, cats, and a turtle named Carl. She is a preschool teacher by day and a caregiver to her daughter, Austen, who was diagnosed with Dravet syndrome in 2016. Meagan has relied heavily on her "village" of other Dravet syndrome caregivers in the years since Austen’s diagnosis. She writes her column in the hope of paying it forward to other parents who are fighting each day to help their child thrive in spite of their circumstances.
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Articles by Meagan Earley
I just finished my first month as an official first-year teacher. There have been quite a few tears and even…
Our family’s summer came to an end last week when Austen, my 7-year-old daughter with Dravet syndrome, and her…
It’s been a long time since I’ve written — too long. But I have some amazing news to share. When…
Later today, after writing this column, I will leave for a five-day vacation without my kids. My mom and dad…
“Mom, where is my friend? You know, the one who looks like my twin?” We were at the baseball practice…
When my 6-year-old daughter, Austen, was born, she seemed completely “normal” for the first five months of her life. She…
When my daughter Austen, now 6, started having seizures years ago due to Dravet syndrome, it took us over…
“Mom, I’ve decided I don’t want you working anymore. Now I have to go to school even earlier, and I…
“Mom, is Austen OK?” Addi, my 13-year-old daughter, was on the school bus headed home last…