Meagan joined BioNews in 2020 as a columnist for Dravet Syndrome News. Before joining the BioNews team Meagan was a freelance writer for six years. She also runs her own blog www.athomewithmeagan.com, where she writes about homemaking and parenting. Meagan lives in Colorado with her husband and three children. Her youngest daughter, Austen, was diagnosed with Dravet syndrome in May 2016 at 1 year old.For my husband and me, Christmas came early this year. Today, Dec. 22, marks four months of seizure freedom for our daughter, Austen. The only time she has ever gone this long without a seizure was before her first seizure at 5 months…
When I started this job, I really thought I would be writing about seizures each week. So, I find it kind of baffling that I barely write about them at all anymore. But the biggest “symptom” of Dravet syndrome we are…
Tantrums in the grocery store when too many people are around. Biting friends and siblings when they don’t want to share their toys right away. Throwing herself on the ground when someone tells her no, or even not right now.
I come from a diverse Christian background. My mom is Mormon, while my dad was raised Episcopalian. I’ve dabbled with nondenominational, Baptist, and Pentecostal churches in my own search for what was right for me. When my daughter, Austen, was 4 months old — just three…
Thanksgiving is one of my top two favorite holidays. But when I was a kid, my family did something at the Thanksgiving dinner table that I absolutely hated. It was a tradition many American families have: going around one by one to say what you are thankful for…
Moms don’t get sick days. I remember my mom telling me that one day when I called in desperation. The Army had recently moved us to California for my husband’s training, the first time I had ever been away from my family long-term.
I have a confession. I used to hate Epilepsy Awareness Month. Maybe it’s because our daughter Austen’s first seizure happened in November, so I’m a little bitter about the month in general. Or maybe it’s because I’m a naturally introverted person,…
“Look at the sky, Mom, it’s orange. That means it’s Halloween!” Austen was right, the sky was a very beautiful orange that morning. But I gently tried to explain to her that it wasn’t yet Halloween. It was no use. Within minutes, we were in full…
Today a mom asked me if I thought she should try Fintepla (fenfluramine) for her child. They had just started a new medication and weren’t seeing any results. I told her I thought it was worth the try, but not to take Austen’s good experience as proof…
I saw a meme a while back that explains what would happen if a special needs mom fell into a hole and could not get out. Many people come across her in this hole. A family member asks her if it is really as bad…
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