The Journey to the Truth
— Meagan Cheney

Today something rare happened in our home. My husband woke up before me and quietly ushered our 5-year-old daughter, Austen, into the living room so I could sleep in. I had just started to drift back into…

As of March 25, my husband and I are as immune as can be to COVID-19, as we’re two weeks past our second dose of the vaccine. It’s been a little over…

I have two daughters. Each time the doctor told me I was having a girl, my heart skipped a beat in excitement. I never had a sister, and the thought of having a tiny human…

For the past five years, I have been with my daughter Austen during every doctor’s appointment, blood draw, and medical test and procedure. Every time she’s walked through the doors of the doctor’s office or…

I am often asked why I write about my life so much. Or if I get tired of sharing the daily ins and outs of our family life.  I guess I see where people are…

For parents of a young child with a debilitating condition, sometimes even the most common childhood comments can make the heart skip a beat. Last week, my daughter Austen ran up excitedly and exclaimed, “Mama,…

“Remember, nobody likes a brat.” I think I might have started a column with that same statement before, but the reason I do so is because it’s one of the most memorable things I’ve been…

Regardless of how long my daughter Austen goes without a seizure, the risk is always there. Without a cure for Dravet syndrome, that risk will always exist in the shadows, lurking and hiding, and waiting for the perfect circumstances…

For so long, we avoided many things because of my daughter Austen’s seizures. We didn’t go on play dates, or to indoor playgrounds. We barely even went to friends’ birthday parties…

Author and relationship blogger Fawn Weaver said, “A great marriage isn’t something that just happens; it’s something that must be created.” According to the American Psychological Association, about 40-50% of marriages in the U.S. end in divorce.

When it comes to our journey with Dravet syndrome, my husband has always been the optimist among us. When our daughter Austen’s seizures kept coming in those first few months, my husband held out hope…

I want to be a domestic goddess and have a home that’s pristinely clean whenever you open the door. I want a home that’s company-ready, whether you come through the door at 6 a.m.