When my daughter Avery was diagnosed with Dravet syndrome at just 10 months old, I wondered what her life would look like. I knew it would be different from that of her peers, particularly as she grew older. Some of my greatest questions became: Will she have friends? Will…
Embracing Life with Dravet
— Sarah Lango
Sarah Lango is a small town girl from rural Missouri whose greatest joy is being a wife and mother to three. Her full-time gig is college and career adviser at the local high school. After her youngest daughter, Avery, was diagnosed with Dravet syndrome nearly 10 years ago, Sarah made it her mission to share their journey, both the good and bad, so other families would feel less alone.
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School started this week for my 10-year-old daughter, Avery. In many ways, Avery is like most kids — she is social, values friendship, and wants to be accepted by her peers. But in other ways, she is very much unlike her peers. Avery has Dravet syndrome, a rare, severe,…
