I woke up and rolled over to the ordinary sight of my daughter, Avery, lying beside me. Her long, underweight body wrapped up in the blankets is an everyday reminder that our life and sleeping arrangement are unique. Most nights, it’s impossible to forget she is there. Her lanky legs…
Embracing Life with Dravet
— Sarah Lango
Sarah Lango is a small town girl from rural Missouri whose greatest joy is being a wife and mother to three. Her full-time gig is college and career adviser at the local high school. After her youngest daughter, Avery, was diagnosed with Dravet syndrome nearly 10 years ago, Sarah made it her mission to share their journey, both the good and bad, so other families would feel less alone.
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This week, I cried in an individualized education program (IEP) meeting. I didn’t even know what an IEP meeting was until I sat in a room full of education professionals the year my daughter Avery started preschool. An IEP was necessary for Avery, who is now 10, due to…
