The Journey to the Truth
— Meagan Earley

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Meagan Earley lives in Paris, Texas, with her three children, dogs, cats, and a turtle named Carl. She is a preschool teacher and a caregiver to her daughter, Austen, who was diagnosed with Dravet syndrome in 2016. Meagan has relied on her village of other Dravet syndrome caregivers in the years since Austen’s diagnosis, and writes her column in the hope of paying it forward to other parents who are fighting each day to help their child thrive in all circumstances.

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Her name is Sister Bear Potato, and she is exactly what we needed

A few months after my daughter Austen passed away due to complications of Dravet syndrome, we acquired a new dog. My husband, Dakota, and I had begun talking about how both of our families have traditions of naming animals after loved ones who have passed on. His aunt and…

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Dravet Syndrome Doesn’t Only Involve Seizures

It was the summer of 2016, and I was trying my best to finish my grocery shopping with three kids in tow. My list was short and the store was slow that morning. It should have been a fast and easy trip. But the calming music dancing through…

Columns

The Journey to the Truth

When my daughter, Austen, first started seizing at 5 months old, we were told that it was probably just febrile seizures … even when she went into a status seizure two days later, had to have a code blue called, and was transferred to a bigger hospital with…

Columns

The Seizure That Changed Our Lives

“It’s probably just a febrile seizure. It happens to one in 25 children, and 60% of those kids will never have another one. She’s going to be fine.” Those were the words spoken to me by the emergency room doctor, a…

Columns

The Call That No Parent Wants to Receive

I was alone in the car on a hot May day. My daughter, Austen, who had just turned 1 and was baptized the previous day, slept in her car seat while my husband ran into the store.  Then the phone rang. “Her test…